正文
急问 （儿童糖尿病I）：９岁女儿酮症酸中毒 Diabetic Ketoacidosis (DKA)住院。 如何应对？ 怎样照顾I型糖尿病儿童？
Sorry, I am slow in Chinese input. Please allow me to type in English.
My 9-years-old daughter visited China three weeks ago and had cold/flu symptoms, such as vomiting, no appetite and lethargic. We took her to see doctors in hospital in China twice and she was treated as stomach upset and normal cold. The hospital even give her 葡萄糖点滴 (don’t know the English for it).
The third time we sent her to hospital, the hospital did blood and urine lab, both showed high sugar levels. Ketone was found in her urine. Her blood sugar lever was 38 (the normal range should be under 6). She was diagnosed with DKA 酮症酸中毒.
Now, she was further diagnosed with Type I Diabetes. We did not have a family history of diabetes and my daughter is in China. Now, she needs to monitor her blood sugar more than 10 times a day and have 4 insulin injections. Her blood sugar lever changes significantly before and after meal (6 to 8 before the meal and 13-16 after the meal).
My questions are:
1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?
2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?
3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?
4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?
5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?
6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.
Just feel overwhelmed and stressed out. If you are a doctor, a diabetic patient or know someone that has the similar experience, please share the insights with us. If you are a fellow parent, please give me some advice. Thanks!!
Sorry, I am slow in Chinese input. Please allow me to type in English.
My 9-years-old daughter visited China three weeks ago and had cold/flu symptoms, such as vomiting, no appetite and lethargic. We took her to see doctors in hospital in China twice and she was treated as stomach upset and normal cold. The hospital even give her 葡萄糖点滴 (don’t know the English for it).
The third time we sent her to hospital, the hospital did blood and urine lab, both showed high sugar levels. Ketone was found in her urine. Her blood sugar lever was 38 (the normal range should be under 6). She was diagnosed with DKA 酮症酸中毒.
Now, she was further diagnosed with Type I Diabetes. We did not have a family history of diabetes and my daughter is in China. Now, she needs to monitor her blood sugar more than 10 times a day and have 4 insulin injections. Her blood sugar lever changes significantly before and after meal (6 to 8 before the meal and 13-16 after the meal).
My questions are:
1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?
2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?
3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?
4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?
5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?
6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.
Just feel overwhelmed and stressed out. If you are a doctor, a diabetic patient or know someone that has the similar experience, please share the insights with us. If you are a fellow parent, please give me some advice. Thanks!!
1型的多是自身免疫系统的问题。大概只有10%的糖尿病人是1型。
你要愿意可以给我发个纸条，留你的email或者电话，我可以跟你聊聊我的经历。
把女儿带回美国，这边的各项设施和体系更好。
中国跟美国血糖的换算是中国的数字乘以18等于美国的。我当年住院的时候也是这么高的血糖。
有条件的给孩子用PUMP,更方便。
有糖尿病的孩子可以过NORMAL LIFE的，生孩子都可以的。
重点是调饮食和多锻炼。有一个1型糖尿病的世界研究机构，你可以给孩子和你们全家做个测试，看你们是家族遗传的还是病毒感染的。
她要是有糖尿病，你的其他几个孩子也要小心。